№ files_lp_3_process_7_062747
Preliminary mission report summarizing meetings, legal frameworks, medical and social context, and initial findings regarding the human rights situation of persons with albinism and Heřmanský–Pudlák Syndrome in the United States following an official country visit in October 2024.
Author: Independent Expert on the enjoyment of human rights by persons with albinism
Country: United States of America
Locations visited: Washington D.C.; Atlanta, Georgia; San Juan, Arecibo and Quebradillas, Puerto Rico
Dates of visit: 7–18 October 2024
Document type: Preliminary findings report
Subject: Human rights of persons with albinism and Heřmanský–Pudlák Syndrome
Institutions engaged: Federal and state government agencies; research and medical institutions; civil society organizations
Legal framework referenced: ICCPR; CERD; Americans with Disabilities Act; Rehabilitation Act of 1973; Civil Rights Act; Law 109 of 2022 (Puerto Rico)
Communities concerned: Persons with albinism; persons with Heřmanský–Pudlák Syndrome; family members
Planned follow-up: Presentation of full report to the UN Human Rights Council in March 2025
Price: 8 / 10 USD
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