№ lp_1_2_03214
Informed consent text describing the conditions, scope, and ethical framework for voluntary participation in a university-led qualitative research study on emergency and disaster communication involving children with special health care needs and individuals with autism spectrum disorders.
Institution: Drexel University
Unit: Center for Public Health Readiness and Communication, Dornsife School of Public Health
Document type: Informed consent form
Research study title: Effective Communication in Public Health Emergencies - Developing Patient-Centered Tools for Children with Special Health Care Needs and Individuals with Autism Spectrum Disorders
Researchers: Esther Chernak, MD, MPH; Renee Turchi; Jennifer Plumb
Geographic scope: Pennsylvania, United States
Target population: Families and caregivers of children and youth with special health care needs, health care providers, emergency responders, and health IT experts
Study purpose: Examination of disaster communication needs of children and youth with special health care needs and individuals with autism spectrum disorders
Study duration: Approximately 24 months
Participant time commitment: 60–90 minutes
Planned sample size: 150 participants
Participation terms: Voluntary, with the option to withdraw at any time
Risks: No anticipated physical or psychological risks
Costs to participants: None
Compensation: $25 gift card for families, caregivers, or persons with special health care needs
Ethical review: Approved by an Institutional Review Board
Contact institutions: Drexel University; Drexel A.J. Autism Institute
Price: 8 / 10 USD
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