№ lp_1_26604
File format: docx
Character count: 3377
File size: 30 KB
Year:
2020
Region / City:
[Country]
Topic:
Rare Disease Awareness, Health Campaign
Document Type:
Press Release
Organization:
[Country organization]
Author:
[Name of author]
Target Audience:
General public, Healthcare professionals, HAE community
Period of Activity:
16 May 2020
Approval Date:
[Date]
Date of Changes:
[Date]
The press release announces a global campaign to raise awareness about hereditary angioedema (HAE), where people across the country will participate in a global walk challenge for hae day:
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Year:
2023
Region / city:
Canberra
Topic:
Life-threatening poisoning management
Document Type:
Guideline
Organization / institution:
Canberra Health Services
Author:
Policy Team
Target audience:
Medical officers, Nursing staff
Effective period:
Ongoing
Approval date:
25/01/2023
Modification date:
25/01/2023
Organisation:
Jersey Hospice Care
Department:
Children and Young People’s Team (CYPT)
Address:
Mont Cochon, St Helier, Jersey JE2 3JB
Contact email:
[email protected]
Telephone:
01534 780 780
Website:
www.jerseyhospicecare.com
Region:
Jersey
Country:
Bailiwick of Jersey
Service type:
Nurse led daytime respite care and palliative support
Service hours:
Monday to Friday 9am–5pm
Eligible age range:
0–18 years
Eligibility criteria:
Life-limiting and life-threatening conditions categorised into four groups according to Together for Short Lives
Referral types:
Young person, parent/carer/guardian, healthcare professional
Sections included:
Consent, Reason for referral, Personal details, Medical history, Professionals involved, Communication preferences
Legal framework:
Data Protection (Jersey) Law 2018
Intended recipients:
Children and young people with life-limiting or life-threatening conditions and their families
Processing note:
For Hospice use only section including triage timeframe and CYPT nurse signature
Year:
2026
Population:
Adults and children with severe, life-threatening external bleeding
Intervention:
Wound clamp
Comparison:
Direct pressure or other hemostatic measures
Outcomes:
Mortality due to bleeding, cessation of bleeding, time to hemostasis, death from any cause, decrease in bleeding, adverse effects
Setting:
Out-of-hospital, combat, hospital simulations
Perspective:
First aid provider and/or patient
Study Design:
Observational studies, case series
Certainty of Evidence:
Very low
Conflict of Interest:
None identified
Context:
Systematic review and evidence assessment examining the effects of wound clamps versus other hemostatic techniques on bleeding control and mortality in pre-hospital and simulation settings.
Year:
2026
Region / city:
Cheshire and Mersey, UK
Subject:
Prevention of life-threatening ventricular arrhythmias
Document type:
Medical correspondence
Institution:
NHS / Cheshire and Mersey Area Prescribing Group
Author:
Consultant Cardiologist
Patient name:
[Redacted]
NHS number:
[Redacted]
Date of birth:
[Redacted]
Current medication:
Mexiletine
Duration of treatment:
Long-term
GP responsibilities:
Repeat prescribing, monitoring of renal function, liver function, electrolytes, and adverse reactions
Specialist responsibilities:
Initial stabilization, annual review, communication with GP, provision of medication for safe transfer
Prescription status:
Amber Retained licensed preparation
Date:
[Redacted]
Year:
2021
Region / City:
Not specified
Subject:
Anatomy, Embryology, Clinical Relevance
Document Type:
Research Article
Institution:
Journal of Folia Morphologica
Author:
S. Shaheen et al.
Target Audience:
Medical professionals, Researchers
Period of Action:
Not specified
Approval Date:
Not specified
Date of Changes:
Not specified
Year:
2024
Region / city:
UK
Topic:
Rare bone diseases, XLH
Document type:
Guidance
Organization:
Rare Disease Collaborative Network (RDCN)
Author:
MK Javaid, M Conway, J Bubbear, O Gardiner, R Lachman, R Keen, N Gittoes
Target audience:
Healthcare professionals involved in rare bone diseases
Period of validity:
November 2024 - November 2025
Approval date:
November 2024
Date of next review:
November 2025
Note:
Context description
Note:
Year
Subject:
Contract Law
Document Type:
Academic Article
Author:
Jonathan Morgan
Target Audience:
Legal professionals, scholars
Document type:
Media release template
Campaign:
Rare Disorders Month
Campaign period:
28 February – 31 March
Geographic focus:
Aotearoa New Zealand
Primary organisation:
Rare Disorders NZ (RDNZ)
Key individual mentioned:
Chief Executive Chris Higgins
Advocacy focus:
Rare disorders awareness and policy implementation
Target audience:
Media, community members, supporters, policymakers
Start date reference:
International Rare Disease Day, 28 February
Hashtags:
#GlowUpShowUp, #RareDisordersMonth, #DoRightByRare
Referenced website:
raredisorders.org.nz
Template release timing:
For immediate release or embargo
Year:
Not specified
Region / city:
Tirupati, Andhra Pradesh
Theme:
Medical case report, parasitic infections
Document type:
Case Report
Organization / institution:
Sri Venkateswara Medical College
Author:
M. Rama Devi, C. Jaya Bhaskar, M. Pradeep, Shankar Reddy Dudala
Target audience:
Medical professionals
Period of validity:
Not specified
Approval date:
Not specified
Date of changes:
Not specified
Context:
Case report documenting a rare case of disseminated strongyloidiasis in an immunocompromised patient, including treatment details and outcome.
Year:
2025
Location:
RIKEN Nishina Center, RIKEN
Field:
Nuclear and Particle Physics
Document Type:
Event Agenda
Institution:
RIKEN, IBS
Target Audience:
Researchers and scientists in nuclear and particle physics
Period of Activity:
August 19–21, 2025
Date of Approval:
Not specified
Date of Changes:
Not specified
Description:
Detailed agenda for the 2nd Japan-Korea Symposium on TOPTIER Platform, focusing on extreme rare isotope science, with parallel sessions and scientific discussions.
Year:
2026
Country:
United States
City:
Washington, D.C.
Document Type:
Regulatory filing form
Form Type:
SEC Form 4
Regulatory Authority:
U.S. Securities and Exchange Commission
Legal Basis:
Section 16(a) of the Securities Exchange Act of 1934; Section 30(h) of the Investment Company Act of 1940
Issuer:
USA Rare Earth, Inc.
Ticker Symbol:
USAR
Reporting Person:
Michael Blitzer
Position of Reporting Person:
Chairman of the Board of Directors
Address of Reporting Person:
167 Madison Avenue, Suite 205 #1017, New York, NY 10016, United States
Date of Earliest Transaction:
January 29, 2026
Security Type:
Common Stock (par value $0.0001 per share)
Transaction Code:
P
Securities Acquired:
100,000 shares
Transaction Price:
$21.4386 per share (weighted average)
Shares Beneficially Owned Following Transaction:
847,500 shares (direct)
Indirect Ownership:
3,125,000 shares through Inflection Point Holdings II LLC
Filing Date:
January 29, 2026
Related Entity:
Inflection Point Holdings II LLC
Year:
2026
Region / City:
Tirana, Albania
Topic:
Medical Case Report
Document Type:
Case Report
Organization:
University Hospital "Shefqet Ndroqi", Hygea Hospital, Public Pharmacy Service
Author:
Fadil Gradica, Daniela Xhemalaj, Arjana Sina, Lutfi Lisha, Dhimitraq Argjiri, Alma Cani, Fahri Kokici, Blerim Arapi, Flora Gradica, Aishe Lala
Target Audience:
Medical Professionals, Researchers
Period of Validity:
N/A
Approval Date:
N/A
Modification Date:
N/A
Keywords:
Spontaneous, Haemomediastinum, pain, aneurism, thyroid artery
Context:
A clinical case report documenting a rare instance of spontaneous hemomediastinum caused by a thyroid artery aneurysm, diagnosed and treated with contrast-enhanced CT and transcatheter embolization.
Year:
None
Region / City:
None
Theme:
Neurology
Document Type:
Case Report
Organization / Institution:
None
Author:
Jethro Budiman
Target Audience:
Medical Professionals
Period of Validity:
None
Approval Date:
None
Date of Changes:
None
Note:
Gene
Year:
2020
Region / city:
Not specified
Topic:
Genetic variants, Germline mutations
Document type:
Supplementary Table
Author:
Matejcic et al
Target audience:
Researchers in genetics, oncology
Period of validity:
Not specified
Approval date:
Not specified
Modification date:
Not specified
Year:
2019
Region / City:
United States
Topic:
Rare diseases, Scientific research, Clinical research, Neuroendocrine cell hyperplasia of infancy (NEHI)
Document Type:
Research grant proposal
Organization:
National Organization for Rare Disorders (NORD)
Author:
NORD
Target Audience:
Researchers, Clinical investigators, Healthcare professionals
Period of Validity:
From June 18, 2019
Approval Date:
N/A
Date of Amendments:
N/A
Year:
2022
Region / City:
Kolkata, India
Topic:
Intestinal parasitic co-infection, Segmental colitis
Document Type:
Case Report
Institution:
Institute of Post Graduate Medical Education & Research, SSKM Hospital, Kolkata
Authors:
Dr. Sanchari Bairagya, Dr. Dipankar Paul, Dr. Kumkum Bhattacharyya
Target Audience:
Medical professionals, researchers, students in microbiology and gastroenterology
Date of Approval:
2022
Date of Modification:
Not specified
Keywords:
Protozoa, Helminths, Co-infection, Segmental colitis, Giardia intestinalis, Hymenolepis nana, Strongyloides stercoralis
Year:
2008
Region / City:
Wethersfield, CT
Topic:
Antique and Special Interest Motor Vehicle Assessment
Document Type:
Affidavit
Agency / Institution:
Town of Wethersfield
Author:
Assessor’s Office
Target Audience:
Vehicle Owners
Effective Period:
Ongoing
Date Approved:
Not Specified
Date of Amendments:
October 1, 2008
Year:
2026
Region / city:
United Kingdom
Topic:
Rare diseases healthcare coordination
Document type:
Guidance / Notification form
Organization:
NHS England, NHS Scotland, NHS Wales, Health and Social Care Northern Ireland
Author:
Rare Diseases Advisory Group
Target audience:
Healthcare providers applying to join or establish European Reference Networks
Period of validity:
Ongoing until superseded
Date of issue:
2026
Related documents:
Guidance on the recognition of healthcare providers and UK oversight of applications
Year:
2023
Country:
Sweden
Field:
Genomics, Rare Diseases, Medical Ethics
Document Type:
Research Article
Institution:
Karolinska University Hospital; Karolinska Institutet; Lund University; Skåne University Hospital; Uppsala University; Sahlgrenska University Hospital
Authors:
Katja Ekholm, Annelie Augustinsson, Johan Sundström, Christian Johansen, Maria Storgärds, Lena Ljöstad, Fulya Taylan, Eva Ekblom, Stephanie Juran, Marlene Ek, Charlotta Ingvoldstad Malmgren, Maria Johansson Soller, Mikaela Friedman, Sofia Thunström, Lovisa Lovmar, Ann Nordgren, Hans Ehrencrona, Anna Lindstrand
Target Audience:
Researchers, clinicians, genetic counselors
Study Period:
2020–2023
Methodology:
Multicenter pilot study, electronic informed consent implementation
Sample Size:
2,244 participants in clinical routine cohort, additional participants in UDN Sweden cohort
Key Topics:
Electronic informed consent, patient engagement, rare disease genomics, data sharing, accessibility, comprehension
Date:
6/1/25
Locations:
1129 N. Main, 1120 N. Main, 530 N. Main, 626 N. Main, 870 Parkdale, 1011 W. University, Vacant Parcel on Dequindre, 265 South Street, 328 South Street, 440 South Street, Pine Knoll Estates, 147 North Lane, 1205 N. Main, 704 Woodward, 210 Diversion, 110 South Street, 211 1st Street, 134 W. University, 203 E. University, 303 E. University, 501 W. University, 139 Romeo, 500 E. Second Street, 321 E. Second, 265 E. Second, 107 E. Second, 406 S. Main, 401 S. Main, 329 S. Main, 223 S. Main, 220 S. Main, 200 S. Main, 134 S. Main, 125 S. Main, 120 S. Main, 415 Walnut Blvd., 114 W. 3rd, 339 East Street
Type of document:
Development and business update report
Themes:
Urban development, construction projects, new housing, business expansions, commercial and residential redevelopment
Organizations involved:
Planning Commission, Oakland County Parks Division, Downtown Development Authority, RARA, EGLE
Developers / Businesses:
Dilusso Building Company, Paul’s on Main Street, Cottage Inn Pizza, Endo, Kemp Enterprises, OPC, The Assistance League, Bella Real Estate Holdings, Mr. Peter Kalaj, Mr. Joe LoChirco, Riverfront Place, Ernie’s on the Creek, Board Babez, Tata Café, D’Marcos Restaurant, Tri-County Gift Basket, Chomp Deli, Oak Street Design Architects
Construction periods:
2025–2026